I am 23 years old and have recently been diagnosed with Breast Cancer. At this point in my life, I am unsure whether I should be mad, sad, or angry. However, if there is one thing that I have learned during my journey, it is that once I choose HOPE, anything is possible. I have decided to create this blog to allow others to get a glimpse of my journey and see how I am progressing day by day.
Tuesday, November 2, 2010
A Day in the Life of Jill
Well I can't believe I let a month go by without blogging..I guess I better catch you all up to speed..a slow moving speed that is ;)
Needless to say, I have become a druggy ha ha kidding. I'm just surprised my body hasn't gone into shock. yet. Anyways, in addition to receiving chemotherapy treatments every two weeks, Jilly gets to take home these lovely cocktails of pills, drinks, and injections....I shall explain. Prior to each treatment I have to take 3 steroids, the Emend(featured in the middle) and 2 other pills in order to prevent any sort of nausea from the chemo...I continue taking these pills for 3 days after. I'm proud to say I haven't puked once since the first treatment; although I do get the dry heaves sometimes.
To the far left we have my Neupogan...oooooo it is evil I tell you. About 24 hours after my chemo treatment Ellie has to administer these Neupogan shots into my stomach. Their sole purpose is to help increase my blood count levels because the chemo lowers them drastically. Normally, I was getting these shots for 5 days after chemo, but now I am getting them for 10 because my blood count levels were still too low. For example, your normal white blood cell level should be between 4 and 11...mine was 0.3. In a nutshell, when your blood counts are low, you are more susceptible to infection but about a million times more serious. So if you are wondering why you haven't seen me or read a silly blog, it's because I've basically had to quarantine myself and rest rest rest. So on a funny note, because I have taken about 30 injections into my stomach lately and my blood counts have been so kaka, I've actually started to look like a pin cushion hehe. I have all these little bruises all over my stomach. As a matter of fact, the last shot bruised pretty bad and I have this huge black and purple blotch...I would post a picture of it but my boobie doo belly is really boobying right now (I'm sure only a few of you will understand that) - I blame it on the roids hahaha
So the big medicine bottle full of liquid is actually called the Magic Mouth Wash...let me tell you there is nothing magical about it other than the fact that it looks like the Slime from the sewers in Ghostbusters 2. One of the nasty side effects from chemo is mouth sores or thrush...Luckily (knock on wood) I haven't experienced any of that yet, but I got nervous one day so I took a swig just to be cautious...They say take one tablespoon swoosh and swallow...OH MY GOSH...if there was ever a time I was going to barf...that was it...Let's just say the magic mouth was is hidden in the back of the fridge...yuck...even thinking about it triggers nausea hahaha
Anyways, the rest of the pills are just pain killers, sedatives, sleeping pills, acid reducers....you know everything a druggy would carry around.
Alright, let's stop talking about my pill-popping life he he
I have now completed 4 rounds of chemotherapy which means I am now on the countdown...4 more to go..wooo hooo On a happy note, I never have to experience the RED DEVIL ever again yay!
I'm sure many of you are probably wondering how I am doing with chemo and how I'm feeling. To be honest, I really don't want to sit here and blog about how awful I am feeling because that's just too depressing and I would feel awful if that's all you guys had to read about. So I'll make this part brief haha. Chemo is kicking my butt. Inside of the 2 weeks, I usually only get 3 days where I feel somewhat normal and the rest I am usually in bed..but even though I feel horrible most days, I know that I am saving my life and that in just a few more months I will be in remission feeling fabulous :) Ok done..no more drepessing talk
So Friday I am starting a whole new chemo drug called Taxol. I'm also getting Herceptin which isn't a chemo drug, but an antibody that will help prevent the cancer from coming back. The Herceptin I will be on for the next year. I go there for 8am and the nurse said to prepare to be there all day. I guess each drug takes 3 hours to infuse plus and hour in between and before and after to "flush" the port....So about 9 hours in total..ewww. I better bring a book or something.
Anyways, funny story...I asked the nurse that was administering my last chemo what I should expect from the Taxol and here is a clue to what she said:
FROZEN OVEN MITTS my friends!!! So apparently while the Taxol is being infused, it attacked the peripherals right away. More specifically, the Taxol attacks the nail beds causing them to lift and get infected. So in order to prevent that, I have to wear these frozen oven mitts and occasionally dunk my hands in ice baths ...really??? Is that not the funniest thing you've ever heard..I really hope this nurse was kidding. I'll let you know how it goes though.
Anyways, not too much new with me. I apologize this blog wasn't as silly as the other ones...more to come though. Hope you all have a wonderful week...Thanks for all of your love and support...you all mean the world to me. I will blog soon!
Again sorry for the bad grammar...my brain is getting fried...must be all these drugs ;)
Lots of Love
Jilly
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Jilly, you're my hero in so many ways, you don't even know.
ReplyDeleteSending you lots of peace and love!
-Lindsey
Did you seriously watch Ghostbusters 2? I did not even know that existed.
ReplyDeleteJill you have taught me a lot about the meds, it sounds overwhelming and even as a med student you never understand exactly just how much is required. Thank you for this insight, I know it will help me understand future patients much more.
-Mike
yup frozen gloves are real. They did not ahve them 18 months ago. So it was an ice soak. Now they have the gloves. HUGS here for you any time!
ReplyDeleteOh Jill, you are handeling this with class! Yes, it does suck and that last round of chemo is empowering. Like me, once they take that needle out of you for the last time, you will crawl off that hospital bed... gather your things and as you are walking away you will look back at that bed and SMILE. A wave of happiness will come over you and it is great. You are almost there and when you are done you have a TEAM of survivors waiting to give you a HUMUNGO group hug.
ReplyDeleteLove ya.... Teresa (your survivor sister)
Your almost there Jill. You have gone up the mountain now you are on your way down to the valley of friends, family and health. You still may have a few bumps in the journey but you will get there, you have already proven that. Cancer cannot win against you!! Way to go!!
ReplyDeleteTammie(Survivor)
You are one of the strongest people I know Jill. God bless you and keep your head up. Luv ya and talk to you soon.
ReplyDeleteRob K
jill this blog is awesome! what a great way for you to keep everyone who loves and supports you updated and to vent and get out some of your feelings about this whole experience. keep it up (when you're feeling up to it)...it's good that you're getting your thoughts out and not bottling them up inside. can't wait to see your cue ball/mercedes wig. lol
ReplyDeletexoxox
-andrea
Jill you are absolutely amazing and an inspiration to a lot of people!!when i found you you were diagnosed i was absolutely floored but seeing and reading how strong, amazing and high spirited you are is truly magnificent! Ill be thinking of you and I wish nothing but great things for you! I look forward to reading more blogs when you get a chance to write!
ReplyDeletekeep popping those pills!! lol
ps the ice mitts and baths are the funniest thing Ive ever heard your right about that! lots of love and thoughts to you!
Amanda DiPietro xoxo
Jilly I am so happy that you chose this route of writing this inspiring blog! It is keeping everyone posted on how amazingly strong you are! My moms best friend (also a breast cancer goer) once said, God only inflicts these types of situations on the strongest people he knows, the ones he knows can handle it. I stick by that statement after reading your blog. You are absolutely the strongest 23 yr old girlie I have ever met! I am thinking about you constantly!
ReplyDeleteCarley Quinlan xo
Thanks Everyone!!! Your support means the world to me...you are the ones that give me the strength!
ReplyDeleteFor those who were wondering...there were no frozen oven mitts this time hehe The nurse said only if I notice a severed change in my nails in between this cycle and the next one, then we will mitt is up :)
Jill,
ReplyDeleteI literally just cried but also laughed throughout all your blogs you've been posting. You are seriously so strong throughout all this, and so inspiring to many people reading these!! Please keep it up love. Stay positive! Stay strong. and keep posting your blogs!! xoxo.
Deanna * =)